On November 6, 2003 I embarked on a journey that would change my life forever. This was the day I received my first infusion of the MPS II (Hunter syndrome) enzyme replacement therapy drug, Idursulfase (now called Elaprase). 10 years later I can honestly say that weekly Elaprase infusions have not only improved my overall quality of life, including my breathing, flexibility, energy level, speech enunciation, and decreased organ size, but have saved my life. If I had not left my life behind in Victoria, British Columbia, and embarked on this life changing journey I do not think I would be here right now. I am eternally grateful to receive weekly Elaprase infusions and to stop the progression of my disease and a chance of a prolonged life.
To honour the 10 year anniversary of this special day, I ask for your support of the iBellieve Foundation’s ‘Two For MPS II’ campaign. Please donate $2 or $20 and ask two other people to do the same. My goal is to raise $10, 000 from Wednesday, November 6, 2013 to Friday, December 6, 2013 (my birthday). All proceeds will go to support MPS II research at the University of North Carolina Medical Center in Chapel Hill (UNC). We have worked extensively with our partners at UNC and have gained their support and approval and are now seeking to fund a $3M professorship for Dr. Joseph Muenzer. Funds from this professorship will allow Dr. Muenzer to reopen his lab and eliminate financial concern. It will create an environment where he and those working with him can push the frontiers of MPS II research. With this professorship, funding will be available until UNC no longer exists or MPS II is cured!
Elaprase is only a treatment. Please join us in pushing for a cure for MPS II to eliminate this devastating disease. This is my dream and the mission of the iBellieve Foundation. With your continued support and advice, our goals are within reach.
Please support the ‘Two For MPS II’ campaign and help change the lives of MPS II patients, such as Trey, Case, Jack, Riley, and others, and help find a cure.
iBellieve – Do You?