On Friday, November 20, 2015 St. Michaels University School (SMUS) is hosting a school wide Service Day benefitting the iBellieve Foundation.
iBellieve Foundation Founder, SMUS alumnus, and 2012 Distinguished Alumnus Award recipient, Simon Ibell, is honoured to return to the school to speak with all SMUS students about the importance of Service and giving back to the community in which we live.
Simon credits SMUS for the significant role the school has played in shaping his life and who he is today. He is forever thankful for the privilege of being a part of this great school. His time here taught him much, and it shaped his character, confidence and work ethic as he set out into the world, determined to make a difference.
The iBellieve Foundation – Canada’s first charitable organization dedicated to finding a cure for Simon’s condition, MPS II (Hunter Syndrome), while raising the profile of rare diseases within Canada.
Rare Diseases may be rarely discussed, but they affect thousands across the country. While MPS II affects only a handful of people in Canada, 1 in 12 are affected by one of the 7000+ conditions classified as a Rare Disease. And yet few Canadians ever hear of Rare Diseases and their reach. Canada is in desperate need for an approved Federal Strategy to support all Canadians living with a rare disease.
Please join the iBellieve Foundation in their fight to find a cure for MPS II and raise awareness for all rare diseases. With SMUS community’s support and commitment to spread iBellieve’s message, their goals are within reach.
While MPS II affects just 30 people in Canada and 2000 worldwide, its cure could propel breakthroughs in over 50 related lysosomal storage disorders (LSDs), which are much more common. To put this in perspective, every 30 minutes a baby is born with an LSD.
For the first time ever, a cure for MPS II has become not only possible, it is now probable. Adequate funding has become the lone major obstacle in the way of a cure.
There is NO ‘I’ in TEAM though and I would love to have the SMUS community, including students, parents, faculty, and alumni, join the iBelllieve Foundation team in finding a cure for MPS II and 50 related disorders.
With your commitment and financial support, our goals are within reach.